Hayley with other children with progeria, and posing with Justin Bieber. Children with progeria begin to display signs of this condition, which include growth failure, loss of body fat and hair, wrinkled skin and stiff joints at around months and eventually die of heart disease atherosclerosis or hardening of the arteries.
During her short but productive life, Hayley met Prince Charles, Kylie Minogue and Justin Bieber, as well as starred in other TV documentaries, spoke at numerous events and traveled around the world.
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Hayley inspired others with her optimism, as well as her sheer candidness. It would be good to not have it, and it would be fun to go out and not get stared at and not have loads of people ask questions.
Hayley Okines on progeria: 13-year-old reveals all about her life with rapidly ageing disease
I would rather have progeria than not have it, though. The entire Progeria family mourns together with many as we say goodbye to Hayley Okines, our smart, beautiful and spirited English Rose, who passed away today at age We share one of our favorite photos of Hayley and her mum, Kerry.
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Thank you all for your kind thoughts. Hayley is survived by her parents, Kerry and Mark, and her siblings Louis and Ruby. Lifestyle Home.
Progeria Book: 'Old Before My Time'
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Tributes pour in for Hayley Okines, inspirational progeria campaigner who died at 17
Image zoom. Hayley Okines.
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